{"id":255287,"date":"2022-12-15T18:20:58","date_gmt":"2022-12-15T17:20:58","guid":{"rendered":"https:\/\/www.fqeuskadi.org\/?p=255287"},"modified":"2022-12-15T18:24:21","modified_gmt":"2022-12-15T17:24:21","slug":"oporrak-alaiak-eta-distiratsuak-ez-direnean","status":"publish","type":"post","link":"https:\/\/www.fqeuskadi.org\/eu\/oporrak-alaiak-eta-distiratsuak-ez-direnean\/","title":{"rendered":"Eguberriak alaiak eta distiratsuak ez direnean"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 class=\"p1\">Gabonetako denboraldia erronka estresagarria izan daiteke FK duten familientzat<\/h2>\n<p class=\"p3\">Gauero, gure alaba jaioberrien zainketa intentsiboetako unitatean (UCIN) zaindu ondoren etxera iristen nintzenean, gure posta sailkatzen nuen. Gabon sasoia hurbiltzen ari zen heinean, Gabonetako txartelak jasotzen hasi nintzen bata bestearen atzetik. Bertan agertzen ziren elkarrekin zeuden <b>familia irribarretsuek<\/b> nabarmendu zuten nire familia bananduta zegoela.<span class=\"Apple-converted-space\">\u00a0 <\/span>Semean etxean izan genuen festetan,<b> alaba bere bizitzagatik ospitalean borrokan<\/b> zegoelarik. Gabonetako txartel bat ikusten nuen bakoitzean <b>haserretzen nintzen<\/b>, eta hauek irekitzeari utzi nion.<\/p>\n<blockquote>\n<p class=\"p3\">Haserre hori Gabonetako denboraldiari berez dagokion presioak elikatu zuen. Etxean seme zaharrago bat genuenez, Gabonetako <b>ospakizun tipikoetan parte hartzera behartuta<\/b> sentitu nintzen. Poztasun gutxi nuen sentitu urte hartako oporretan.<\/p>\n<\/blockquote>\n<h3 class=\"p3\">Gure alaba babesten<\/h3>\n<p class=\"p3\">Gaur egun, urte sasoi honek<b> kezka multzo<\/b> ezberdin bat dakar Gabonetako denboraldian ospitaletik kanpo egoten saiatzen garen bitartean. Fibrosi Kistikoarekin bizi garen familiok arriskuak aztertu eta neurri \u201cextra\u201d batzuk hartu beharra ditugu.<\/p>\n<p class=\"p3\">Nire alaba helduagoa eta kontzienteagoa da, honek lan gehiago eginarazten dit ospitalea saihesteko. Arnas birusak neguan iristen dira bere puntu gorenera, eta horrek oporrak nola eta norekin igaroko ditugun erabakitzeko <b>hautu zailak<\/b> hartzera behartzen gaitu.<\/p>\n<p class=\"p3\">Horregatik, FKak ekartzen duen <b>isolamenduak astunagoa dirudi urte sasoi honetan<\/b>, elkarrekin egotea eta ospatzea azpimarratzen denean. Sarritan, osasuntsu egoteko saiakeran, jarduera eta ekitaldiak galtzen ditugu. Gure alaba, askotan, gaixorik egoten da, eta oporretako irteerak debekatzen dituen arnas-tratamendu gehiago jasotzen ditu. Batzuetan, beste guztien gainetik bide segurua aukeratu behar izaten dugu.<\/p>\n<p class=\"p3\">Baina gure alabaren lehen Esker Emate Eguna, Gabonak eta Urte Berria Zainketa Berezien Unitatean igaro ondoren, ospitaletik kanpo familian igarotzen den edozein festa ospakizun nahikoa da niretzat. <strong>Familia bakar batek ere ez luke ospitalean oporrak igaro behar.<\/strong><\/p>\n<blockquote>\n<p class=\"p3\">Ospitalean egun garrantzitsuak igarotzen ari direnentzat, gogoratu ez dagoela jai egunak igarotzeko modu egokirik. Jai giroan egoteko gogorik ez baduzu, ez behartu zure burua jaiak ospatzera edo beste une baterako birprogramatu. Ospitaleko zure gela apaindu nahi baduzu, egin ezazu.<b> Gakoa da nola sentitzen zaren errespetatzea eta ez uztea inoren <\/b>Gabonetako itxaropenek nola sentitzen zaren eragiteari. Azken batean, oporrek gauzak perspektiban jarri behar dituzte <b>benetan garrantzitsua dena<\/b> erakusteko.<\/p>\n<\/blockquote>\n<p class=\"bio-type-display--medium\"><strong>Jennifer Chamberlain, Cystic Fibrosis News Today webgunean<\/strong><\/p>\n<p class=\"p3\"><a href=\"https:\/\/cysticfibrosisnewstoday.com\/columns\/christmas-challenging-children-hospital\/\"><b>Testu originala<\/b><\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Gabonetako denboraldia erronka estresagarria izan daiteke FK duten familientzat Gauero, gure alaba jaioberrien zainketa intentsiboetako unitatean (UCIN) zaindu ondoren etxera iristen nintzenean, gure posta sailkatzen nuen. Gabon sasoia hurbiltzen ari zen heinean, Gabonetako txartelak jasotzen hasi nintzen bata bestearen atzetik. Bertan agertzen ziren elkarrekin zeuden familia irribarretsuek nabarmendu zuten nire familia bananduta zegoela.\u00a0 Semean etxean [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":255281,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[47],"tags":[],"class_list":["post-255287","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-fq-berriak"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Eguberriak alaiak eta distiratsuak ez direnean - FQ EUSKADI<\/title>\n<meta name=\"description\" content=\"Gaur egun, urte sasoi honek kezka multzo ezberdin bat dakar Gabonetako denboraldian ospitaletik kanpo egoten saiatzen garen bitartean.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.fqeuskadi.org\/eu\/oporrak-alaiak-eta-distiratsuak-ez-direnean\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Eguberriak alaiak eta distiratsuak ez direnean - 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