{"id":2198,"date":"2015-04-14T18:42:25","date_gmt":"2015-04-14T16:42:25","guid":{"rendered":"https:\/\/www.fqeuskadi.org\/?p=2198"},"modified":"2016-01-03T11:37:42","modified_gmt":"2016-01-03T10:37:42","slug":"fibrosi-kistikoaren-egun-nazionala-apirilak-22","status":"publish","type":"post","link":"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/","title":{"rendered":"Fibrosi Kistikoaren egun nazionala , Apirilak 22."},"content":{"rendered":"<p><span style=\"color: #0000ff;\"><strong>Euskadiko Fibrosi Kistikoaren elkartea Federazioak egin duen deialdira gehitu egiten da.<\/strong><\/span><\/p>\n<p><strong>Aste osoan parte hartzea sare sozialetan elkarbanatu eta Fibrosi Kistiokarekin erlazionatutako laguntza mezuak bidaltzea sustatu nahi dugu<span style=\"color: #0000ff;\"> #mifuturoYAesposible<\/span> traolarekin eta xaboi ponpei putz egiten argazki bat igo <span style=\"color: #0000ff;\">#PompasPorLaFibrosisQuistica<\/span> traolera gure gaixotasuna gizartean ezagun egiteko helburuarekin.<\/strong><br \/>\n<strong>Federazioak gaixotasuna gelditzen duten tratamendu berrien premiazko emana eskatu nahi du<\/strong> (Kalydeko eta haren konbinaketak) \u201cSendagai berriekin, ORAIN nire etorkizuna posible da\u201d. Federazioak sendagai berrien eskuratzearen zailtasuna aldarrikatzen du eta denbora gehiago ez itxarotea haien finantziazioa aprobatzeko 2014ko urritik baitago aprobatuta Espainiako Sendagaien Agentzian. <strong>Horregatik<\/strong>, eta hurrengo Fibrosi Kistikoaren Egun Nazionala ospatzeagatik,<strong> federazioak<\/strong> <strong><span style=\"color: #0000ff;\">\u201cSendagai berriekin, ORAIN niere etorkizuna posible da\u201d<\/span><\/strong> <strong>goiburua aukeratu du.<\/strong><br \/>\n<strong>Helburua gizartea Fibrosi Kistikoa duten pazienteek duten gaur egungo egoeraz sentsibilizatzea da, etorkizunera begiratzen dute sendagai berri eta hobeagoak jasotzeko asmoz<\/strong>.<\/p>\n<p>Baina etorkizun hori ez da posible Estatuak sendagai horien finantziazioari baietza ematen ez badio eta laster ematen hasten ez badute.<br \/>\n<span style=\"text-decoration: underline;\"><em><span style=\"color: #0000ff;\"><strong>Euskadiko Fibrosi Kistikoaren Elkarteak ere ekintza sinboliko hau egitera eta sare sozialetan zintzilikatzera animatzen du gaixotasun hau argira ateratzeko eta jendea fibrosi kistikoa zer den eta nola harekin bizitzen den jakiteko.<\/strong><\/span><\/em><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Euskadiko Fibrosi Kistikoaren elkartea Federazioak egin duen deialdira gehitu egiten da. Aste osoan parte hartzea sare sozialetan elkarbanatu eta Fibrosi Kistiokarekin erlazionatutako laguntza mezuak bidaltzea sustatu nahi dugu #mifuturoYAesposible traolarekin eta xaboi ponpei putz egiten argazki bat igo #PompasPorLaFibrosisQuistica traolera gure gaixotasuna gizartean ezagun egiteko helburuarekin. Federazioak gaixotasuna gelditzen duten tratamendu berrien premiazko emana eskatu [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[45],"tags":[],"class_list":["post-2198","post","type-post","status-publish","format-standard","hentry","category-fq-ekitaldiak"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Fibrosi Kistikoaren egun nazionala , Apirilak 22. - FQ EUSKADI<\/title>\n<meta name=\"description\" content=\"Fibrosi Kistikoaren egun nazionala, Apirilak 22.Euskadiko Fibrosi Kistikoaren elkartea Federazioak egin duen deialdira gehitu egiten da.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Fibrosi Kistikoaren egun nazionala , Apirilak 22. - FQ EUSKADI\" \/>\n<meta property=\"og:description\" content=\"Fibrosi Kistikoaren egun nazionala, Apirilak 22.Euskadiko Fibrosi Kistikoaren elkartea Federazioak egin duen deialdira gehitu egiten da.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/\" \/>\n<meta property=\"og:site_name\" content=\"FQ EUSKADI - ASOCIACI\u00d3N FIBROSIS QU\u00cdSTICA EUSKADI\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/fqeuskadi\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-04-14T16:42:25+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2016-01-03T10:37:42+00:00\" \/>\n<meta name=\"author\" content=\"fqeuskadi\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@fqeuskadi\" \/>\n<meta name=\"twitter:site\" content=\"@fqeuskadi\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"fqeuskadi\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minutua\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/\"},\"author\":{\"name\":\"fqeuskadi\",\"@id\":\"https:\/\/www.fqeuskadi.org\/#\/schema\/person\/78417e37f3c9ac22ed797acb51941f81\"},\"headline\":\"Fibrosi Kistikoaren egun nazionala , Apirilak 22.\",\"datePublished\":\"2015-04-14T16:42:25+00:00\",\"dateModified\":\"2016-01-03T10:37:42+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/\"},\"wordCount\":186,\"publisher\":{\"@id\":\"https:\/\/www.fqeuskadi.org\/#organization\"},\"articleSection\":[\"FQ EKITALDIAK\"],\"inLanguage\":\"eu\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/\",\"url\":\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/\",\"name\":\"Fibrosi Kistikoaren egun nazionala , Apirilak 22. - FQ EUSKADI\",\"isPartOf\":{\"@id\":\"https:\/\/www.fqeuskadi.org\/#website\"},\"datePublished\":\"2015-04-14T16:42:25+00:00\",\"dateModified\":\"2016-01-03T10:37:42+00:00\",\"description\":\"Fibrosi Kistikoaren egun nazionala, Apirilak 22.Euskadiko Fibrosi Kistikoaren elkartea Federazioak egin duen deialdira gehitu egiten da.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/#breadcrumb\"},\"inLanguage\":\"eu\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.fqeuskadi.org\/eu\/fibrosi-kistikoaren-egun-nazionala-apirilak-22\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/www.fqeuskadi.org\/eu\/home\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Fibrosi Kistikoaren egun nazionala , Apirilak 22.\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.fqeuskadi.org\/#website\",\"url\":\"https:\/\/www.fqeuskadi.org\/\",\"name\":\"FQ EUSKADI - ASOCIACI\u00d3N FIBROSIS QU\u00cdSTICA EUSKADI\",\"description\":\"FQ Euskadi trabaja por las personas con Fibrosis qu\u00edstica. 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