{"id":5629,"date":"2016-10-26T16:47:20","date_gmt":"2016-10-26T14:47:20","guid":{"rendered":"https:\/\/www.fqeuskadi.org\/eu\/?page_id=5629"},"modified":"2023-03-02T19:47:48","modified_gmt":"2023-03-02T18:47:48","slug":"zer-da-fibrosi-kistikoa","status":"publish","type":"page","link":"https:\/\/www.fqeuskadi.org\/eu\/zer-da-fibrosi-kistikoa\/","title":{"rendered":"ZER DA FIBROSI KISTIKOA"},"content":{"rendered":"

[et_pb_section fb_built=”1″ custom_padding_last_edited=”on|phone” admin_label=”Section – Watch Me Now Header – BG 1900×894 Pixels” module_class=”pixie-header4″ _builder_version=”4.16″ background_image=”https:\/\/www.fqeuskadi.org\/wp-content\/uploads\/2020\/01\/fibrosis-quistica-proteina-cftr.jpg” background_position=”top_center” custom_margin=”|||” custom_padding=”15vw|0px|9vw|0px|false|false” custom_padding_tablet=”120px|0px|120px|0px|false|false” custom_padding_phone=”56px||56px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row custom_padding_last_edited=”on|tablet” admin_label=”Row – Watch Me Now Header” _builder_version=”4.16″ custom_padding=”3vw|0px|1.45%|0px” custom_padding_tablet=”10px|0px|1.45%|0px” custom_padding_phone=”10px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_cta title=”Fibrosi kistikoa” button_url=”#” admin_label=”Imagine the Possibilities” _builder_version=”4.17.4″ header_font=”||||||||” header_text_color=”#ffffff” header_font_size=”48px” header_line_height=”120%” body_font=”||||||||” body_text_color=”#ffffff” body_font_size=”28″ body_line_height=”150%” use_background_color=”off” custom_button=”on” button_text_size=”16″ button_text_color=”#ffffff” button_bg_color=”#000000″ button_border_color=”#000000″ button_font=”Lato|||on|||||” button_use_icon=”off” button_alignment=”center” background_layout=”light” custom_margin=”30px||||false|false” custom_margin_tablet=”40px||||false|false” custom_margin_phone=”” custom_margin_last_edited=”on|desktop” custom_padding=”||||false|false” header_font_size_tablet=”40″ header_font_size_phone=”30″ header_font_size_last_edited=”on|phone” body_font_size_tablet=”24″ body_font_size_phone=”18″ body_font_size_last_edited=”on|phone” custom_css_promo_description=” padding-bottom: 64px;” custom_css_promo_button=” padding: 15px 35px !important;” custom_css_promo_title=” font-weight: 400;||padding-bottom: 6px;” button_text_color_hover=”#000000″ button_border_color_hover=”#ffffff” button_border_radius_hover=”0″ button_bg_color_hover=”#ffffff” global_colors_info=”{}” button_text_size__hover_enabled=”off” button_text_size__hover=”null” button_one_text_size__hover_enabled=”off” button_one_text_size__hover=”null” button_two_text_size__hover_enabled=”off” button_two_text_size__hover=”null” button_text_color__hover_enabled=”on” button_text_color__hover=”#000000″ button_one_text_color__hover_enabled=”off” button_one_text_color__hover=”null” button_two_text_color__hover_enabled=”off” button_two_text_color__hover=”null” button_border_width__hover_enabled=”off” button_border_width__hover=”null” button_one_border_width__hover_enabled=”off” button_one_border_width__hover=”null” button_two_border_width__hover_enabled=”off” button_two_border_width__hover=”null” button_border_color__hover_enabled=”on” button_border_color__hover=”#ffffff” button_one_border_color__hover_enabled=”off” button_one_border_color__hover=”null” button_two_border_color__hover_enabled=”off” button_two_border_color__hover=”null” button_border_radius__hover_enabled=”on” button_border_radius__hover=”0″ button_one_border_radius__hover_enabled=”off” button_one_border_radius__hover=”null” button_two_border_radius__hover_enabled=”off” button_two_border_radius__hover=”null” button_letter_spacing__hover_enabled=”off” button_letter_spacing__hover=”null” button_one_letter_spacing__hover_enabled=”off” button_one_letter_spacing__hover=”null” button_two_letter_spacing__hover_enabled=”off” button_two_letter_spacing__hover=”null” button_bg_color__hover_enabled=”on” button_bg_color__hover=”#ffffff” button_one_bg_color__hover_enabled=”off” button_one_bg_color__hover=”null” button_two_bg_color__hover_enabled=”off” button_two_bg_color__hover=”null”]<\/p>\n

Etorkizun itxaropentsua<\/p>\n

[\/et_pb_cta][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ disabled_on=”on|on|on” _builder_version=”4.16″ disabled=”on” global_colors_info=”{}”][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|desktop” _builder_version=”4.16″ custom_padding_tablet=”50px|0|50px|0″ custom_padding_phone=”” transparent_background=”off” padding_mobile=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.19.2″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” module_alignment=”left” border_style=”solid” global_colors_info=”{}”]<\/p>\n

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Fibrosi Kistikoa gaixotasun kroniko eta hereditarioa da, eta osasun-arazo larriak eragiten ditu. Batez ere, birikei eta digestio-sistemari eragiten dien gaixotasun degeneratiboa da. 4.500 -5.000 jai berrietatik bati eragiten dio, Euskadin 180 gaixo inguru daude.<\/p>\n<\/blockquote>\n<\/div>\n<\/div>\n<\/div>\n

FK duten pertsonen gen akastun batek (CFTR proteina, 7. kromosoman kokatua) biriketan, pankrean eta beste organoetan mukia pilatzen du.<\/p>\n

Biriketan, mukiek arnasbideetako bakterioak buxatzen ditu eta infekzioak sortarazten, biriken ahala pixkanaka mugatuz.<\/p>\n

Pankrean, mukiak gorputzari janariak desegin eta elikagaiak xurga edo bereganatzeko behar dituen digestio entzimak askatzea eragozten du.<\/p>\n

\"portadores-fq-euskaera\"<\/a><\/p>\n

[\/et_pb_text][et_pb_toggle title=”SINTOMAK ” open_toggle_text_color=”#000000″ closed_toggle_text_color=”#000000″ closed_toggle_background_color=”#3bc1fe” icon_color=”#000000″ use_icon_font_size=”on” open_icon_color=”#000000″ open_use_icon_font_size=”on” disabled_on=”off|off|off” _builder_version=”4.16″ title_text_color=”#ffffff” title_font=”|600|||||||” title_font_size=”18px” border_color_all=”#280400″ border_style=”solid” global_colors_info=”{}”]<\/p>\n

\"medico-responde\"<\/a><\/strong><\/p>\n

Eritasun honen sintoma bereizgarriak honako hauek dira: larruazalaren gazitasuna, arnas arazoak maiz izatea, pizu eskasia eta digestio arazoak.
Etengabeko eztula, batzuetan karkaxekin eta biriketako inflamazioak maiz izatea, batzuetan neumonia edo bronkitisarekin ere bai.<\/p>\n

Txistu hotsak edo arnasteko zailtasuna. Gutxi haztea edo pizu gutxi hartzea, jatun ona izan arren<\/p>\n

Eritasunaren agerpenak eta sintomak<\/strong> batez ere digestioari loturik ager daitezke (gorozkietan gantza pilatzea, pankrearen gutxiegitasunarengatik, desnutrizioa, etab.) edo arnasari loturik<\/strong>azken horiek ematen dira gehien adinean aurrera egin ahala, biriketako infekzio errepikatuen moduan, arnas alergia koadroetan eta areagotzen den biriken kalteen moduan..<\/p>\n

Birikak zenbateraino ukituak diren funtsezkoa da FKren pronostikoan.<\/strong>.<\/p>\n

Larruazala gazi izatea eri orotan eman ohi da, izerdian kloro anitz dagoelako.
Horregatik deitzen zaio eritasun honi Musu gaziaren eritasuna.
<\/strong><\/p>\n

\n[\/et_pb_toggle][et_pb_toggle title=”DIAGNOSTIKOA ” open_toggle_text_color=”#000000″ closed_toggle_text_color=”#000000″ closed_toggle_background_color=”#3bc1fe” icon_color=”#000000″ use_icon_font_size=”on” open_icon_color=”#000000″ open_use_icon_font_size=”on” disabled_on=”off|off|off” _builder_version=”4.19.0″ title_text_color=”#ffffff” title_font=”|600|||||||” title_font_size=”18px” border_color_all=”#280400″ border_style=”solid” global_colors_info=”{}”]<\/p>\n

\"icono-auscultar\"<\/a><\/strong><\/p>\n

Gaur egun ez dago sendabiderik<\/strong> gaixotasun genetiko honetarako, baina diagnostiko goiztiarrak pertsonaren bizi-itxaropena luza dezake eta haren kalitatea hobetu.<\/p>\n

IZERDIAREN PROBA<\/strong> diagnostikoa egiteko tresnarik erabilgarriena da gaur egun ere. Hala ere, berriki lortutako adostasunek zalantzan jarri dute haren erabateko eraginkortasuna.<\/p>\n

Analisi genetiko<\/strong> bat ere egin daiteke, FK kasuen alternatiba eta berrespen gisa.<\/p>\n

Gaur egun, diagnostiko goiztiarraren aldeko apustua egiten da “CRIBADO NEONATAL”<\/strong>\u00a0 frogaren bidez.\u00a0<\/p>\n

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Informazio gehiago<\/a><\/p>\n

[\/et_pb_toggle][et_pb_toggle title=”TRATAMENDUAK” open_toggle_text_color=”#000000″ closed_toggle_text_color=”#000000″ closed_toggle_background_color=”#3bc1fe” icon_color=”#000000″ use_icon_font_size=”on” open_icon_color=”#000000″ open_use_icon_font_size=”on” disabled_on=”off|off|off” _builder_version=”4.19.0″ title_text_color=”#ffffff” title_font=”|600|||||||” title_font_size=”18px” border_color_all=”#280400″ border_style=”solid” global_colors_info=”{}”]<\/p>\n

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ELIKADURA<\/strong><\/span><\/h3>\n

\"vegetables-29063__180\"<\/a><\/p>\n

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\u200b<\/p>\n

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Informazio gehiago<\/a><\/p>\n

 <\/p>\n

ANTIBIOTERAPIA<\/strong><\/span><\/h3>\n

\"fibrosis-qusticaok-10-portada167x167\"<\/a><\/p>\n

Antibioterapia<\/b> gaixotasunaren pronostikoa hobetzearen faktore erabakigarrietako bat izan da. Bronkioetako infekzio kronikoari aurre egiteko nahiz gaizkiagotze infekziosoei aurre egiteko erabiltzen da.<\/p>\n

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Informazio gehiago<\/a><\/p>\n

 <\/p>\n

ARNAS FISIOTERAPIA<\/span><\/strong><\/h3>\n

\"fisio1015568_960_720\"<\/a><\/strong>
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Arnas fisioterapia<\/b> bronkioak egunero garbitzean datza nagusiki, haietan mukia pila ez dadin eta hauek, infekziorik ez eragiteko.<\/p>\n

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Informazio gehiago<\/a><\/p>\n

ARIKETA FISIKOA<\/span><\/strong><\/h3>\n

\u00a0\"iconocorazon\"<\/a>
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\u00a0<\/strong><\/span><\/p>\n

Ariketa fisikoak<\/b>, b<\/span>iriken funtzioa mantentzen laguntzen du eta, osasuntsua da giharren eta hezurren tonua mantentzeko.<\/p>\n

\u00a0<\/strong><\/span><\/p>\n

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Informazio gehiago<\/a><\/p>\n

[\/et_pb_toggle][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row column_structure=”1_5,3_5,1_5″ _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”1_5″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][\/et_pb_column][et_pb_column type=”3_5″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.17.4″ text_text_color=”#ffffff” text_font_size=”16px” background_color=”#3bc1fe” custom_padding=”10px||10px|” text_font_size_tablet=”18px” text_font_size_phone=”” text_font_size_last_edited=”on|desktop” global_colors_info=”{}”]<\/p>\n

ZER DA FIBROSI KISTIKOA<\/p>\n

[\/et_pb_text][et_pb_video src=”https:\/\/youtu.be\/L7mD_3FSdpo” _builder_version=”4.16″ global_colors_info=”{}”]
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ETORKIZUNA itxaropentsua\u00a0 DA<\/span><\/h2>\n

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Benetako FQ unitateen prebentzioa, ikerketa eta sorkuntza funtsezkoak dira FQ duten pertsonen orainaldian eta etorkizunean.<\/p>\n

Funtsezko helburuak dira fibrosi kistikoaren orainak eta etorkizun hurbilak nolakoa izan behar duen ulertzeko.<\/strong><\/p>\n

Ikerketek emaitza onak eman dituzte tratamendu berriekin (Kalydeco, Orkambi, Symkevi eta kaftrio).<\/p>\n

FQ duten pertsonen %80- 90 inguruk tratamendu horiez balia daitezkeen arren, oraindik badira zenbait mutazio dituzten pertsonak tratamendu modulatzaile berrien zain daudenak, edo CFTR proteinaren arazoak konpontzeko terapia geniko deritzona.<\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ disabled_on=”off|off|off” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” link_option_url=”#” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_button button_url=”https:\/\/www.fqeuskadi.org\/futuro-la-fibrosis-quistica\/” url_new_window=”on” button_text=”Ezagutu HEMEN gehiago fibrosi kistikoaren etorkizunari buruz” button_alignment=”center” _builder_version=”4.17.4″ custom_button=”on” button_text_size=”24px” button_text_color=”#000000″ button_bg_color=”#FFFFFF” button_border_width=”1px” button_border_radius=”0px” button_font=”Montserrat|900|on||||||” button_use_icon=”off” custom_margin=”-39px||-39px||true|false” custom_padding=”15px|30px|15px|30px|true|true” scroll_horizontal_motion_enable=”on” scroll_horizontal_motion=”0|50|50|100|0.5|0|-0.5″ locked=”off” global_colors_info=”{}” button_text_color__hover_enabled=”on|hover” button_text_color__hover=”#000000″ button_bg_color__hover=”#7CDA24″ button_bg_color__hover_enabled=”on|hover”][\/et_pb_button][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_blurb title=”ESKULIBURU GARRANTZITSUAK” _builder_version=”4.17.4″ _module_preset=”default” header_font=”||||||||” header_text_color=”#ffffff” header_font_size=”30″ body_font=”|on|||” body_font_size=”30″ background_color=”#3bc1fe” background_size=”initial” background_position=”top_left” background_repeat=”repeat” text_orientation=”center” max_width=”100%” max_width_tablet=”50px” custom_padding=”15px|||” animation=”off” header_font_size_tablet=”22″ header_font_size_phone=”18px” header_font_size_last_edited=”on|tablet” body_font_size_tablet=”24″ body_font_size_phone=”20″ body_font_size_last_edited=”on|tablet” border_color_all=”#280400″ use_border_color=”on” use_circle=”off” use_circle_border=”off” circle_border_color=”#000000″ circle_color=”#000000″ saved_tabs=”all” global_colors_info=”{}”][\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ make_equal=”on” _builder_version=”4.16″ background_enable_color=”off” background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_padding=”|15px||15px” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_blurb title=”FK-RI BURUZKO 101 GALDERA ” url=”https:\/\/drive.google.com\/file\/d\/0BzKFQRVeBVQJVWdsZHNBWUZFYTQ\/view” image=”https:\/\/www.fqeuskadi.org\/wp-content\/uploads\/2016\/10\/101-PREGUNTAS-FQ-200.png” alt=”101 preguntas fq” _builder_version=”4.19.5″ header_font=”|600|||||||” header_text_color=”#280400″ header_font_size=”16″ background_color=”#ffffff” background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”||” custom_padding=”15px|10%|5px|10%” animation=”off” border_width_all=”1px” use_border_color=”off” border_color=”#ffffff” border_style=”solid” image_max_width=”200px” global_colors_info=”{}”]<\/p>\n

\u00a0Bereziki baliagarri fibrosi kistikoa duen haur txikiren bat duten gurasoentzat. Elkartetik ere eman diezazukegu informazioa, nahi baduzu.<\/p>\n

Tf 648128445 email fqeuskadi@gmail.com<\/a><\/p>\n

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